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The "Wu Word" Blog



Posted on March 9, 2020 at 7:07 PM
Suddenly, the memories began flooding at me when I was brought back in time to May 1995 when I was recovering at home from my second kidney transplant.    Since I was little, germs, kidneys, and immune system were introduced into my world and language, but at 12-years-old in 1995, I really began to understand just how very bad germs, bacteria, and viruses (GBV)  were because they could come at my pre-owned and what was deemed as “foreign” kidney from my donor to attack and conquer to the point that my second kidney transplant would reject and I would lose this gift of life.  To try to stop GBV from coming at me and attach my gift of life second transplant, I was told to stay at home and take my fistfuls of color-coded immunosuppressed medications.   The adults said to me that there was no way I should go back to school that was a bedrock of bad from the cluster and crowds of kids.  This made me sad.   All I wanted was to be like the other kids, but I was in indoors bubbled isolation watching the Spring season bloom before my eyes and yet I could not really go out to enjoy the scent of flowers, the warmth of sunshine, the cool cuts and blades of grass under my bare feet, and, most of all, the contact with other kids that I craved.  I could not really be a kid.  It was like I was an adult trapped in a child’s body. 
I think my circle of adults knew how much I wanted to be with other children because at the end of June and less than two months after receiving my second kidney transplant, my wish to just be with the outside world to touch, taste, see, hear, smell, and really feel everything was granted by going to school on just about the last day known as “Field Day.”  It was the day that ALL (and I do mean ALL) the children were there in color-coded teams playing different sports.  I had never felt like I belonged among my classmates, but for that one day, I felt like I belonged.  Sure, I was in a wheelchair and did not say much, but just being with everyone in this living, breathing, and wonderful world had never made me happier and more carefree.    It was one of the best times in my life just to live and be a kid. 
Shortly after my visit and contact with all the children, I got sick.  Horribly sick.  Sick as in news that my second kidney transplant was going into rejection.  It was probably one of the worst and more depressing points in my life.  The fear to lose a gift from a complete stranger who died only to save my life.  The horror that my one wish granted would be my downfall to me being sick again and that the girl who saved my life would have to suffer another ‘death’ in the sense of her life-saving organ.  Yet, in spite of all the fear and horror, I had no regrets.  I had the best time in my life just being in this breathing world after being bubbled for what I saw as much too long.  I had been around other kids who had shown me kindness and like I did not have ‘cooties.’  They did not fear me or shelter and shield me like the adults just so I could be myself and be a kid.  I did not and could never let fear control and stop me from living my life to the fullest.  I could not live or be in isolation. 

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